Vlora Vlora Vuciterna, asamist of the Vetevendosje Movement in Rahovec, has appealed publicly to Health Minister Arben Vitita, seeking to ensure tricatta (Caftrio) therapy for patients suffering from cyst fibroza.
Vuqiterna, who by means of a post at Fücebook, also announced that she is a mother of a girl with this disease, has demanded that the Ministry of Health urgently handle the request of the Cestic Fibroza Association, which, according to her, has been sent several times over the years, writes Insyder.
She has said that the lack of this therapy is forcing some families to think about leaving Kosovo so that their children have access to the treatment they need.
The barnats and treatments that are now available in the countries of the region should also become accessible to our children. They do not deserve to have fewer opportunities to live only because they were born in Kosovo, she has said among other things.
According to her, over 170 patients have been registered with cystic fibrosis, while currently there are about 60 patients.
We’re not asking for privilege. We’re looking for the right to life, to breathe, and to treat our children with dignity, she wrote, calling on Minister Vitita to listen to family demand. /Insander.org/
Source Layer: Insander